Folia Health Launches the First Data Dividends Program to Recognize the Power of Patient and Caregiver Knowledge

Boston, MA , September 13, 2019

Folia Health, a woman-owned company that enables patients and families to use their knowledge to receive the best care possible, has announced the launch of Data Dividends, the first program to directly recognize the value of patient and caregiver contributions to healthcare informatics. Folia enables members to capture and share details of the symptoms, treatments, well-being changes, and behaviors that they experience. The app, clinic reports, and support services are free to members, who have the option to contribute their data to research initiatives that improve medical treatment and standard of care; these research projects form the basis of the Folia Health business model.

“In order to recognize the dream of precision medicine, in which every person gets exactly the right diagnosis and care plan, we need a better source of information on how people respond to treatment outside of the four walls of the clinic,” said Nell Meosky Luo, Founder and CEO of Folia Health. “To do this, we need to augment the voices of the patient and caregiver. For so long, the healthcare system has held patient data hostage behind complicated processes, antiquated copy fees, and paternalistic attitudes. Data Dividends is our statement that this era is over - we’re championing transparency and true partnership with the patients and caregivers that form the backbone of our healthcare system.”

Folia Health recently expanded beyond their initial pilot condition of Cystic Fibrosis to Primary Immunodeficiency, but any U.S.-based patient or caregiver who tracks their observations regularly is eligible for Data Dividends. Folia can be used to track any condition or undiagnosed disorder. 

About Folia Health:  At Folia Health, we believe patients and their families have the power to transform care. Through Folia, you can track symptoms, behaviors, treatments, and more, and use these observations to achieve the best care possible for yourself or your loved ones. Folia is enabling precision in healthcare, with a little help from the people who care most. www.foliahealth.com

Folia Health Announces Primary Immunodeficiencies (PI) as Second Condition of Focus at the IDF National Conference

Boston, MA, June 21, 2019

Folia Health, the digital health company that enables patients and caregivers to use their observations to get the right healthcare, has announced the launch of primary immunodeficiencies (PI) as their second condition. PI diseases affect 500,000 people across the United States, and were the original inspiration for Folia, as the founder’s family is affected by the condition.

“Through our experience working with the cystic fibrosis community, we have learned that there is an immense need to bring the voices of patients & caregivers back to the clinic in an organized way, so that every patient gets the right care, every time,” said Nell Meosky Luo, Founder and CEO of Folia Health. “As we transition from our pilot phase and begin to add new communities to the Folia family, we’re excited to start work in PI.”

According to the Immune Deficiency Foundation, which is holding its bi-annual conference in Washington D.C. June 20-22, 2019, individuals with PI often face challenges in receiving specialized healthcare and proper diagnosis and treatment.

About Folia Health:  At Folia Health, we believe patients and their families have the power to transform care. Through Folia, you can track symptoms, behaviors, treatments, and more, and use these observations to achieve the best care possible for yourself or your loved ones. Folia is enabling precision in healthcare, with a little help from the people who care most. www.foliahealth.com


Contact

Nell Meosky Luo

nell@foliahealth.com

Folia Health Announces New Provider Program

Bridge by Folia Promises to Put Patients and Families One Step Closer to Precision Medicine

Boston, MA, April 1, 2019  

Folia Health, the home-reported outcomes company that enables patients and their families to use their observations to take control of their healthcare, has just announced Bridge by Folia, their new provider program. Bridge will help patients  families communicate their observations of how well treatments are working to their care teams, in an effort to improve the evidence-base available for clinic visits.

“We feel fortunate that so many incredible partners and clinics are a part of Bridge by Folia, our new provider program” stated Nell Meosky Luo, Founder and CEO of Folia Health. “As we’ve worked with families to capture and organize their observations, we’ve realized that there is a true value in using this new data to bridge the gap between the everyday experience of the patient and family, and what the care team sees at the clinic.”

Existing Bridge by Folia partners include Maine Medical Center, Texas Dell Med, and The University of Vermont Larner College of Medicine.


About Folia Health: At Folia Health, we believe patients and their families have the power to transform care. Through Folia, you can track symptoms, behaviors, treatments, and more, and use these observations to achieve the best care possible for yourself or your loved ones. At Folia, we are enabling precision healthcare, with a little help from the people who care most. www.foliahealth.com