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The Folia Blog

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About Folia
Free graphs? Ok Google, that's old news at Folia!
The Folia Health Research Team 3/16/23 The Folia Health Research Team 3/16/23

Free graphs? Ok Google, that's old news at Folia!

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Bobbie's Autoimmune Story: Challenges with Step Therapy & Work Accommodations
The Folia Health Research Team 3/14/23 The Folia Health Research Team 3/14/23

Bobbie's Autoimmune Story: Challenges with Step Therapy & Work Accommodations

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Your Experience Is Real: An Autoimmune Journey
The Folia Health Research Team 3/8/23 The Folia Health Research Team 3/8/23

Your Experience Is Real: An Autoimmune Journey

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I Have a Sjögren's Diagnosis and I'm Lucky
The Folia Health Research Team 3/6/23 The Folia Health Research Team 3/6/23

I Have a Sjögren's Diagnosis and I'm Lucky

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Have you been told your autoimmune symptoms are all in your head?
The Folia Health Research Team 3/2/23 The Folia Health Research Team 3/2/23

Have you been told your autoimmune symptoms are all in your head?

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Reducing time to diagnosis in autoimmune diseases
The Folia Health Research Team 3/2/23 The Folia Health Research Team 3/2/23

Reducing time to diagnosis in autoimmune diseases

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Recognizing Rare Disease Day
About Folia The Folia Health Research Team 2/28/23 About Folia The Folia Health Research Team 2/28/23

Recognizing Rare Disease Day

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Lighting Your Own Path: Living with the consequences of someone else's actions
Patient Stories The Folia Health Research Team 2/2/23 Patient Stories The Folia Health Research Team 2/2/23

Lighting Your Own Path: Living with the consequences of someone else's actions

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Folia's Week of Giving Thanks: A Community Spotlight on Latoya
Patient Stories The Folia Health Research Team 11/22/22 Patient Stories The Folia Health Research Team 11/22/22

Folia's Week of Giving Thanks: A Community Spotlight on Latoya

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Community Spotlight: In the Kitchen with Jennifer W.
The Folia Health Research Team 10/27/22 The Folia Health Research Team 10/27/22

Community Spotlight: In the Kitchen with Jennifer W.

Jennifer and her service dog, Gemma

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Reflecting on a Community Coming Together
About Folia The Folia Health Research Team 9/14/22 About Folia The Folia Health Research Team 9/14/22

Reflecting on a Community Coming Together

As Folia continues to grow, we recognize the importance of our users’ knowledge.

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This is what being a “rare” caregiver is like.
Caregiver Chronicles The Folia Health Research Team 8/12/22 Caregiver Chronicles The Folia Health Research Team 8/12/22

This is what being a “rare” caregiver is like.

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Why the Pain Scale Is Inadequate in Capturing Sickle Cell Pain Crisis
About Folia The Folia Health Research Team 6/19/22 About Folia The Folia Health Research Team 6/19/22

Why the Pain Scale Is Inadequate in Capturing Sickle Cell Pain Crisis

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COVID-19 in August 2021: Vaccine updates, booster shots, and the delta variant
Condition Information Nell Meosky Luo 8/14/21 Condition Information Nell Meosky Luo 8/14/21

COVID-19 in August 2021: Vaccine updates, booster shots, and the delta variant

COVID-19 update on vaccines, booster shots, immunocompromised decisions, and more.

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[Updated Aug 14, 2021] Should I get the COVID-19 vaccine?
Condition Information Nell Meosky Luo 5/22/21 Condition Information Nell Meosky Luo 5/22/21

[Updated Aug 14, 2021] Should I get the COVID-19 vaccine?

Feeling a bit overwhelmed by all the vaccine news lately? See below for a Folia digest on the latest and greatest information on COVID-19 vaccines, focused on what you need to know to make an informed choice. Featuring info on immune deficiencies, side-effects, and differences between the vaccines.
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What if decentralized trials also meant better measurement of what matters?
Nell Meosky Luo 5/20/21 Nell Meosky Luo 5/20/21

What if decentralized trials also meant better measurement of what matters?

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Why you'll *love* our new privacy policy
About Folia The Folia Health Research Team 12/16/20 About Folia The Folia Health Research Team 12/16/20

Why you'll *love* our new privacy policy

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Is it safe to go to the doctor now? What to do if you’re told to come in for an appointment.
The Folia Health Research Team 11/18/20 The Folia Health Research Team 11/18/20

Is it safe to go to the doctor now? What to do if you’re told to come in for an appointment.

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The problem with "objective" and "subjective" measures - objectively speaking
About Folia The Folia Health Research Team 9/11/20 About Folia The Folia Health Research Team 9/11/20

The problem with "objective" and "subjective" measures - objectively speaking

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Home-Reported Outcomes: Enabling a global understanding of the patient experience
About Folia Nell Meosky Luo 9/1/20 About Folia Nell Meosky Luo 9/1/20

Home-Reported Outcomes: Enabling a global understanding of the patient experience

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