6 years later and AI is here: Revisiting Blog Post 1 "What we're missing"

Nell Meosky Luo 9/30/25 Nell Meosky Luo 9/30/25

6 years later and AI is here: Revisiting Blog Post 1 "What we're missing"

From a 2019 manifesto to 2025 reality: the truth that AI must be built on home-reported outcomes was clear then—and is even more urgent now. Folia helps capture them.

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Here’s what you need to know about the administration’s statement that ”taking Tylenol is not good” for pregnant women

The Folia Health Research Team 9/23/25 The Folia Health Research Team 9/23/25

Here’s what you need to know about the administration’s statement that ”taking Tylenol is not good” for pregnant women

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Lauren’s Story: From Rare Disease to a Renewed Sense of Purpose

Cortlynn Danby 8/22/25 Cortlynn Danby 8/22/25

Lauren’s Story: From Rare Disease to a Renewed Sense of Purpose

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Traveling This Summer with Chronic Illness: Tips to Stay Well and Enjoy the Trip

Cortlynn Danby 7/10/25 Cortlynn Danby 7/10/25

Traveling This Summer with Chronic Illness: Tips to Stay Well and Enjoy the Trip

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Tip of the Month: Track Your Blood Pressure on Folia

Cortlynn Danby 7/10/25 Cortlynn Danby 7/10/25

Tip of the Month: Track Your Blood Pressure on Folia

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Chronic Illness Essentials: Must-Haves for Low Spoons, School Days, and Social Plans

Cortlynn Danby 7/9/25 Cortlynn Danby 7/9/25

Chronic Illness Essentials: Must-Haves for Low Spoons, School Days, and Social Plans

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Folia at DIA in Washington, D.C.: Advancing patient collaboration in research

The Folia Health Research Team 6/30/25 The Folia Health Research Team 6/30/25

Folia at DIA in Washington, D.C.: Advancing patient collaboration in research

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Folia is in D.C. to represent you: What matters to patients, matters to research.

The Folia Health Research Team 6/16/25 The Folia Health Research Team 6/16/25

Folia is in D.C. to represent you: What matters to patients, matters to research.

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How to Keep Track of Weather-Related Flare Triggers

Cortlynn Danby 6/5/25 Cortlynn Danby 6/5/25

How to Keep Track of Weather-Related Flare Triggers

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From Track to Treatment: Brandon’s Battle with AAV

Cortlynn Danby 5/23/25 Cortlynn Danby 5/23/25

From Track to Treatment: Brandon’s Battle with AAV

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Regeneron bought 23andMe…what does this really mean?

Nell Meosky Luo 5/23/25 Nell Meosky Luo 5/23/25

Regeneron bought 23andMe…what does this really mean?

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Can I Ever Feel Good Living With PNH? Here’s What I Learned

Brandi Lewis 5/22/25 Brandi Lewis 5/22/25

Can I Ever Feel Good Living With PNH? Here’s What I Learned

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Growing Through What No One Else Can See

Cortlynn Danby 5/15/25 Cortlynn Danby 5/15/25

Growing Through What No One Else Can See

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How Your Insights Shape PNH Research

The Folia Health Research Team 5/15/25 The Folia Health Research Team 5/15/25

How Your Insights Shape PNH Research

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Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T

Nell Meosky Luo 5/13/25 Nell Meosky Luo 5/13/25

Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T

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How to Track Your Seasonal Allergies on Folia

Cortlynn Danby 5/8/25 Cortlynn Danby 5/8/25

How to Track Your Seasonal Allergies on Folia

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Learning to Listen: How Tracking Health Metrics Can Empower Vasculitis Patients

Brandon Hudgins 4/30/25 Brandon Hudgins 4/30/25

Learning to Listen: How Tracking Health Metrics Can Empower Vasculitis Patients

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Traveling Through Diagnoses: Bella’s Journey to PNH

Cortlynn Danby 4/23/25 Cortlynn Danby 4/23/25

Traveling Through Diagnoses: Bella’s Journey to PNH

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How to use Folia if you have high triglycerides

The Folia Health Research Team 4/18/25 The Folia Health Research Team 4/18/25

How to use Folia if you have high triglycerides

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7 PNH Resources to Help You Understand Your Illness

Brandi Lewis 4/15/25 Brandi Lewis 4/15/25

7 PNH Resources to Help You Understand Your Illness

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