The Folia Blog ☰ All Posts About Folia Research Condition Information All Conditions Autoimmune Disease Eczema Chronic Kidney Disease IgAN C3G Lupus PNH Sickle Cell Disease Cystic Fibrosis Cancer Patient + Caregiver Chronicles All Chronicles Autoimmune Disease Eczema Chronic Kidney Disease IgAN C3G Lupus PNH Sickle Cell Disease Cystic Fibrosis Cancer Folia Guides About Folia Nell Meosky Luo 1/28/25 About Folia Nell Meosky Luo 1/28/25 Your knowledge matters: The power of what you notice about your health Read More Condition Information Elle Lee, LCSW 1/21/25 Condition Information Elle Lee, LCSW 1/21/25 A Guide to Cultivating a Helpful Mindset with Chronic Kidney Disease Read More Condition Information Shanelle Gabriel 1/21/25 Condition Information Shanelle Gabriel 1/21/25 Turning Down When When Everyone Wants to Turn Up Read More Condition Information, Folia Guides Marisa Zeppieri 1/13/25 Condition Information, Folia Guides Marisa Zeppieri 1/13/25 Your Health, Your Voice: A Guide to Self-Advocacy Read More About Folia Nell Meosky Luo 12/31/24 About Folia Nell Meosky Luo 12/31/24 A reflection on 2024 (a letter from our CEO) Read More Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey Read More Condition Information, Folia Guides The Folia Health Research Team 12/27/24 Condition Information, Folia Guides The Folia Health Research Team 12/27/24 How to use Folia if you have IgA Nephropathy Read More Condition Information Marisa Zeppieri 12/26/24 Condition Information Marisa Zeppieri 12/26/24 The Hormonal Flare-Up: Why Autoimmune Symptoms Could Spike Before Your Period Read More Condition Information Elle Lee, LCSW 12/20/24 Condition Information Elle Lee, LCSW 12/20/24 Finding Stability in the Uncertainty of Chronic Kidney Disease (CKD) Read More Folia Guides Cortlynn Danby 12/17/24 Folia Guides Cortlynn Danby 12/17/24 Managing Flares Around the Holidays: Prioritize Your Health with These Simple Tips Read More Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Life Post- Bone Marrow Transplant – How to Find Yourself Again Read More Condition Information Marisa Zeppieri 12/10/24 Condition Information Marisa Zeppieri 12/10/24 Lupus Triggers and Flare-ups: A Survival Guide for the Newly Diagnosed Read More Condition Information Selena Burland 12/6/24 Condition Information Selena Burland 12/6/24 How to Find Financial Support When You Have PNH Read More Condition Information Selena Burland 11/22/24 Condition Information Selena Burland 11/22/24 From Athlete to Feeling Winded Folding Laundry: My Journey to Diagnosis with Paroxysmal Nocturnal Hemoglobinuria & Aplastic Anemia Read More Condition Information Selena Burland 11/15/24 Condition Information Selena Burland 11/15/24 How I Determined a Bone Marrow Transplant was the Best Choice for My PNH Treatment Read More Condition Information Nell Meosky Luo 11/14/24 Condition Information Nell Meosky Luo 11/14/24 Winter is coming…Here are the eczema essentials that got us through last season Read More Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 How to Find PNH Support When It Feels Like You’re One in a Million Read More Condition Information Nell Meosky Luo 10/4/24 Condition Information Nell Meosky Luo 10/4/24 Living the Atopic March When it’s not just eczema...adding allergies and asthma attacks to the mix! Read More Condition Information Jordan Owashi 9/27/24 Condition Information Jordan Owashi 9/27/24 Sickle Cell Therapies the Folia Community’s Taking other than Oxbryta Read More Condition Information Jordan Owashi 9/26/24 Condition Information Jordan Owashi 9/26/24 To Our Sickle Cell Community - On Oxbryta Being Withdrawn and What to do Next Read More Newer Posts Older Posts
About Folia Nell Meosky Luo 1/28/25 About Folia Nell Meosky Luo 1/28/25 Your knowledge matters: The power of what you notice about your health Read More
Condition Information Elle Lee, LCSW 1/21/25 Condition Information Elle Lee, LCSW 1/21/25 A Guide to Cultivating a Helpful Mindset with Chronic Kidney Disease Read More
Condition Information Shanelle Gabriel 1/21/25 Condition Information Shanelle Gabriel 1/21/25 Turning Down When When Everyone Wants to Turn Up Read More
Condition Information, Folia Guides Marisa Zeppieri 1/13/25 Condition Information, Folia Guides Marisa Zeppieri 1/13/25 Your Health, Your Voice: A Guide to Self-Advocacy Read More
About Folia Nell Meosky Luo 12/31/24 About Folia Nell Meosky Luo 12/31/24 A reflection on 2024 (a letter from our CEO) Read More
Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey Read More
Condition Information, Folia Guides The Folia Health Research Team 12/27/24 Condition Information, Folia Guides The Folia Health Research Team 12/27/24 How to use Folia if you have IgA Nephropathy Read More
Condition Information Marisa Zeppieri 12/26/24 Condition Information Marisa Zeppieri 12/26/24 The Hormonal Flare-Up: Why Autoimmune Symptoms Could Spike Before Your Period Read More
Condition Information Elle Lee, LCSW 12/20/24 Condition Information Elle Lee, LCSW 12/20/24 Finding Stability in the Uncertainty of Chronic Kidney Disease (CKD) Read More
Folia Guides Cortlynn Danby 12/17/24 Folia Guides Cortlynn Danby 12/17/24 Managing Flares Around the Holidays: Prioritize Your Health with These Simple Tips Read More
Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Life Post- Bone Marrow Transplant – How to Find Yourself Again Read More
Condition Information Marisa Zeppieri 12/10/24 Condition Information Marisa Zeppieri 12/10/24 Lupus Triggers and Flare-ups: A Survival Guide for the Newly Diagnosed Read More
Condition Information Selena Burland 12/6/24 Condition Information Selena Burland 12/6/24 How to Find Financial Support When You Have PNH Read More
Condition Information Selena Burland 11/22/24 Condition Information Selena Burland 11/22/24 From Athlete to Feeling Winded Folding Laundry: My Journey to Diagnosis with Paroxysmal Nocturnal Hemoglobinuria & Aplastic Anemia Read More
Condition Information Selena Burland 11/15/24 Condition Information Selena Burland 11/15/24 How I Determined a Bone Marrow Transplant was the Best Choice for My PNH Treatment Read More
Condition Information Nell Meosky Luo 11/14/24 Condition Information Nell Meosky Luo 11/14/24 Winter is coming…Here are the eczema essentials that got us through last season Read More
Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 How to Find PNH Support When It Feels Like You’re One in a Million Read More
Condition Information Nell Meosky Luo 10/4/24 Condition Information Nell Meosky Luo 10/4/24 Living the Atopic March When it’s not just eczema...adding allergies and asthma attacks to the mix! Read More
Condition Information Jordan Owashi 9/27/24 Condition Information Jordan Owashi 9/27/24 Sickle Cell Therapies the Folia Community’s Taking other than Oxbryta Read More
Condition Information Jordan Owashi 9/26/24 Condition Information Jordan Owashi 9/26/24 To Our Sickle Cell Community - On Oxbryta Being Withdrawn and What to do Next Read More