Folia at DIA in Washington, D.C.: Advancing patient collaboration in research

How will researchers know what their therapies should target if they don’t ask patients what they really care about? The short answer is they won’t. Researchers are developing treatments for patients, so the logical solution is to ask patients what they want these treatments to address.

However, we understand this doesn’t always seem as easy as it sounds. Researchers want granular data, but can they get this level of granularity from patients? Let’s address the elephant in the room…is it possible?

Yes. It is very possible. And the answer is actually quite simple - digital health technologies (DHTs). Think of a DHT as a tool or app, like Folia Health. Folia is an electronic journal that allows you to capture everything you care about in the way you want to capture it, but it’s also structured so everything you track can be organized into valuable insights for both you and researchers. It’s easy to use, and only takes about 90 seconds per day.

We know this is possible because we’ve been doing it for 9 years. So we invite you to please, join us! We can’t change the future of research without you - after all, you’re the one with the most valuable insights as a patient living this day in and day out. Even if we don’t have an active research program in your condition, you can be a part of this effort toward more effective therapies that matter. We have a Data Dividends program open to everyone, regardless of your condition. Your knowledge is a piece of the puzzle!

In full transparency, we’re not the only ones that know this is the future of research. We were honored to see our CEO and founder Nell Meosky Luo on stage at DIA 2025 in Washington D.C. among incredible panelists who also believe patient collaboration is vital for research. This is where we’re headed, and the future is bright.

Watch Nell’s full talk from DIA 2025 below!