Active research studies

All of our research studies are fully remote and don’t require specific treatments, doctor’s visits, or other appointments.

BRAVE-PWS Caregiver Study is a 6-month study for caregivers of individuals age 4 or older who have been diagnosed with Prader-Willi Syndrome (PWS). Learn more here.

CIDP Compass Study is a 6-month study for adults and caregivers of adults living with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy). Learn more here.

IgAN Bridge Study is a 6-month study for adults and caregivers for children living with IgA Nephropathy (IgAN). Learn more here.

PNH Study is a 6-month fully remote study for adults living with Paroxysmal Nocturnal Hemoglobinuria (PNH). Learn more here.

Connect C3G Study is a 6-month, paid study for adults or caregivers for children living with C3G or MPGN. Learn more here.

Don’t see a study that applies to you?

If you'd like to stay up-to-date on future Folia research opportunities, fill out the form below!

Or check out our Data Dividends program, available to anyone on Folia.

Folia vs. Traditional Research