
The Folia Blog
How are health apps sharing my data with Facebook?
In our second blog post on privacy, we tackle the topic that the entire health care industry has stayed quiet on: sharing data with Facebook. We cover how Facebook advertising works, how your health apps may be sharing your data with Facebook, and what you can do about it.
But the responsibility of safeguarding your health data shouldn’t lie entirely on your shoulders. We’re challenging all digital health companies to step up.
Is my data protected? Questions to ask before downloading that health app
With data privacy once again coming into the spotlight, we developed Your Privacy Checklist to help you navigate the complex world of health apps, so you can be in the driver’s seat for your health data.
Navigating acute episodes as a caregiver
Christina, Head of Growth of Folia Health, shares about her family’s recent hospitalization.
The Road to Data Dividends
We proudly announce that today we become, to our knowledge, the very first digital health company to recognize the enormous contributions that patients and caregivers can make to our collective healthcare dataset through a data dividend.
What we talk about when we talk about data ownership
Economists have been making lots of noise lately about what digital data ownership means.
Why we don’t like the term “treatment adherence”
At Folia, we don’t like the term “treatment adherence.” Yes, it’s a standard term across the healthcare ecosystem, and is definitely an improvement on the old “treatment compliance.” However, the concept of adherence still suggests a paternalistic line of thinking, that people who don’t follow prescribed treatment plans must be irresponsible, lazy, defiant, or indifferent.
How you can help CF research - right now
The future of precision care is up to you, and it’s easier to help than you think.
An incredible milestone for the Folia community
We are excited to share an exciting milestone: you have answered more than 100,000 questions!
The 100,000 questions represent a body of knowledge that was previously inaccessible to clinics and unable to be used by researchers to find a cure for cystic fibrosis. Your knowledge matters.
Your knowledge matters — and now we’re doing something about it
Let’s harness the power of your many observations and take the next big step toward data-driven care.
Helen and Nell, and how tracking can lead to better outcomes
Helen is the mother of seven children, several of who have chronic conditions. One of her children happens to be Folia Health’s founder and CEO, Nell Meosky Luo. This inaugural vlog chronicles how Helen’s tracking of her oldest son’s home reported outcomes led to better care and was happened to provide the inspiration for the birth of this company.
What we’re missing
Medicine’s Machine-Learning Craze Is Only Useful If It’s Built on a Decent Data
Mercedes, breaking down barriers for her daughter
June 19, 2017
Mercedes is a full-time professional and mom of two children, ages 2 and 5. Her oldest, Mila, has Down Syndrome, and Mercedes has spent the past five years becoming an expert in helping her daughter to meet and exceed all expectations set for her.
Helen, mom of 7 and superhero caregiver
June 19, 2017
Helen and her husband, Paul, have seven kids, several of whom have chronic conditions. Their oldest son, Paul, has Common Variable Immune Deficiency, a condition that makes it difficult for him to fight off infections on his own. This interview will focus on Helen's experience learning to navigate the care for Paul's condition.