Caregiver Chronicles

Helen and Nell, and how tracking can lead to better outcomes

Helen and Nell, and how tracking can lead to better outcomes

March 18, 2019

Helen is the mother of seven children, several of whom have chronic conditions. One of her children happens to be Folia Health’s founder and CEO, Nell Meosky Luo. This inaugural vlog chronicles how Helen’s tracking of her oldest son’s home reported outcomes led to better care and was happened to provide the inspiration for the birth of this company.

Amy, on advocating for a methodical approach to CF

Amy, on advocating for a methodical approach to CF

January 12, 2019

This winter, we’re excited to be speaking with caregivers and patients who are using Folia to advocate for themselves, and to move closer to the best possible care for themselves or their loved ones.

Sarah, our intern from the MIT Sloan School of Management, was kind enough to conduct this interview with Amy - a mom who is advocating for a methodical approach to managing her son’s CF.

Kate, on life with three beautiful girls, military moves, and CF

Kate, on life with three beautiful girls, military moves, and CF

February 16, 2018

Kate and her three daughters recently moved to Connecticut due to her husband’s position in the Navy. Her youngest daughter, Lucy, was diagnosed before birth with CF. Now 7 months, Lucy has the biggest smile, she’s starting to crawl, and Kate is in the process of figuring out how to work CF treatments into her family’s life.

Lynn, on managing CF as a team

Lynn, on managing CF as a team

November 11, 2018

This week in the Caregiver Chronicles, we share the story of Lynn, who has two children living with cystic fibrosis. Lynn and her husband Josh have managed to balance the demands of a double treatment schedule with everything else that comes along with raising two elementary school-aged kids. 

Susan & Ted, moving past CF to find a beautiful life

Susan & Ted, moving past CF to find a beautiful life

November 1, 2017

Susan and Ted are a Portland, Maine-based couple with two grown daughters. Hogan, their younger daughter, was diagnosed with CF at age 3. She's now a thriving college student who has lived a remarkably normal life, not defined by her disease. In this post, Susan and Ted share memorable moments of their CF parent journey, and everything that they have learned along the way.