The Folia Blog
Swinging for a Cure: One Advocate's Mission to Make PNH Visible
Diagnosed with a rare, invisible disease, Brianne combined her love of golf with advocacy—raising over $110,000 for PNH research and earning national recognition for her decade-long impact.
The Evolution of PNH: From Discovery to Modern Treatments
While PNH was initially discovered in the 1800’s, it wasn’t until recently that an influx of treatment options became available. Here’a history of PNH treatments and how research can shape the future of PNH care.