Patient Experience Data like You’ve Never Seen Before

Over the past 9 years, we’ve clearly demonstrated that although it seems hard, it’s possible to measure your therapy against the concepts that matter most to patients and clinicians, at scale!

We specialize in patient-driven research studies that clearly demonstrate unmet need, hard-to-measure improvements, and the full impact of your therapy vs. standard-of-care, based on the day-to-day patient experience of their condition.

Let’s talk.

Show the Real-World Impact of Your Therapy With the Outcomes That Drive Decisions

Folia captures what patients experience day to day, starting with the outcomes they name themselves, then tracking change over time.

  • Start with what patients say matters most: Participants surface symptoms and daily impacts that define the condition for them, so what you measure is already meaningful to the people living with it.

  • Measure within patient change: Patient-level data on the real-world impact of treatment and disease burden. The analysis heterogeneous and rare populations actually require.

  • Catch what happens between visits: Flares, key events, and changes recorded as they occur, not recalled months later at the next appointment.

  • Explain treatment behavior: Missed doses, switches, and the "why not" reasons behind them, in patients’ own words

  • Complement your existing strategy: Folia runs alongside validated PROs, and every partnership is built toward an abstract or manuscript your team owns.

Major partners have generated evidence with Folia across nephrology, hematology, immunology, and rare disease. Studies can start small and generate publishable insights in months, not years.

Get Started:Scope a study · See recent publications · Example Condition: Atopic Dermatitis

How it Works:

We offer a comprehensive, end-to-end research solution for complex, heterogeneous conditions, including:

  • Dedicated research and analysis team

  • Protocol design & approval

  • Multi-channel recruitment, e-consent, enrollment

  • Validated ePRO deployment that complements HROs

  • Data stewardship & hosting

  • Linkage to EMR, claims, wearables, and registry data

  • Data analysis and reporting

  • Thought partnership for scientific communications and publications

Customer Perspectives:

My programs often struggle with the fact that traditional clinical endpoints do not demonstrate the full value of the therapy, and we experience a disconnect about endpoints needed for Approval vs. for Reimbursement.

Vice President, HEOR (Neurology Biotech)

This gives you insight that you don’t get from PROs and does not rely on long recall period. To me, that is the interesting nuance.


Executive Director, WW HEOR RWD (Top 10 Pharma)

Learn the real life, real world, impact of your therapy.

Folia Health provides partners with longitudinal, patient-reported outcomes and high-quality structured symptom and treatment reporting. We’ve partnered with life sciences companies of all sizes, from small biotechs to top-10 pharma companies, to enhance their evidence strategy with our unique Home-Reported Outcomes (HROs) and flare diaries.

Fill out the form to let us know where you’re working, and a member of our team will reach out. Let’s show the world the true impact of your therapy.