August 31, 2019
Paul, an adult with PI, draws from his experience attending college and starting law school to share six great tips for navigating higher education while managing a condition. Best of luck in your law school adventure, Paul!
July 29, 2019
Earlier this month, reports began to circulate on the mounting crisis of immunoglobulin shortages. We’ve heard from some of our PI users that IG supplies have been rationed. The Immune Deficiency Foundation released this plea to hospital-based providers and prescribers.
June 8, 2019
The future of precision care is up to you, and it’s easier to help than you think.
March 18, 2019
Helen is the mother of seven children, several of whom have chronic conditions. One of her children happens to be Folia Health’s founder and CEO, Nell Meosky Luo. This inaugural vlog chronicles how Helen’s tracking of her oldest son’s home reported outcomes led to better care and was happened to provide the inspiration for the birth of this company.
January 12, 2019
This winter, we’re excited to be speaking with caregivers and patients who are using Folia to advocate for themselves, and to move closer to the best possible care for themselves or their loved ones.
Sarah, our intern from the MIT Sloan School of Management, was kind enough to conduct this interview with Amy - a mom who is advocating for a methodical approach to managing her son’s CF.
December 29, 2018
Celeste is a busy, happy UT Austin student studying public health. She’s also a CF patient, and a Folia intern. In this post, Celeste shares her plans for a healthy, successful, and exciting 2019!
January 28, 2018
We’ve had a great time speaking with Meg Hall, a social worker at Maine Medical who focuses on supporting cystic fibrosis families in both the child and adult clinics. Meg has had the unique experience of being the connector between the families and the healthcare system, and joined us this week to tell us all about why she loves her job.
June 19, 2017
Helen and her husband, Paul, have seven kids, several of whom have chronic conditions. Their oldest son, Paul, has Common Variable Immune Deficiency, a condition that makes it difficult for him to fight off infections on his own. This interview will focus on Helen's experience learning to navigate the care for Paul's condition.