Why I joined Folia

Christina, the newest member of the Folia team, shares her experience as a caregiver and what moved her to join the company.

About Folia, Caregiver ChroniclesGuest UserJuly 5, 2019caregiver, parenting, school, researchComment

Brett & Kelby, brand-new parents

Hello. We are Brett and Kelby Nicolas.

Our son, Alexander Nicolas, is 11 months old and was diagnosed with Cystic Fibrosis at 10 days old by the new born screening test. He has mutations DF508 and 2789+5G>A.

Caregiver ChroniclesNell Meosky LuoMay 28, 2018cystic fibrosis, parentingComment

Kate, on life with three beautiful girls, military moves, and CF

Kate and her three daughters recently moved to Connecticut due to her husband’s position in the Navy. Her youngest daughter, Lucy, was diagnosed before birth with CF. Now 7 months, Lucy has the biggest smile, she’s starting to crawl, and Kate is in the process of figuring out how to work CF treatments into her family’s life.

Caregiver ChroniclesNell Meosky LuoFebruary 16, 2018cystic fibrosis, caregiver, parenting, treatment tracking, siblingsComment

Jenna, on enjoying every moment

Our first featured caregiver of 2018 is Jenna, Maine-based mom to Kate, a three (almost four!)-year-old living with cystic fibrosis. Jenna and her husband, Cort, have already become fixtures in the Maine CF community.

Lynn, on managing CF as a team

This week in the Caregiver Chronicles, we share the story of Lynn, who has two children living with cystic fibrosis. Lynn and her husband Josh have managed to balance the demands of a double treatment schedule with everything else that comes along with raising two elementary school-aged kids.

Caregiver ChroniclesNell Meosky LuoNovember 11, 2017cystic fibrosis, caregiver, siblings, exercise, parenting, treatment tracking, mental health, sports, familyComment

Cindy, an incredible autism mom

Cindy is a physician with 5 kids, ranging in age from 8 to 19, and is a practicing physician. Her oldest, Marcus, was diagnosed with autism when he was a toddler. Since then, Cindy has become an expert at helping Marcus fit in with his peers and live as normal a life as possible.

Caregiver Chronicles, Care team interviewNell Meosky LuoAugust 27, 2017autism, caregiver, parenting, sports, school, siblingsComment

Mercedes, breaking down barriers for her daughter

June 19, 2017

Mercedes is a full-time professional and mom of two children, ages 2 and 5. Her oldest, Mila, has Down Syndrome, and Mercedes has spent the past five years becoming an expert in helping her daughter to meet and exceed all expectations set for her.