Megan's Experience with POTS, EDS, and MCAS (Part 2)

Patient StoriesGuest UserOctober 27, 2023patient story, rare diseases, AutoimmuneComment

Community Spotlight: Megan's Experiences with POTS, Ehlers-Danlos, and MCAS (Part 1)

Patient StoriesGuest UserOctober 24, 2023patient story, chronic illness, rare diseasesComment

Life Experiences Series: Making the most of yesterday, today, and tomorrow

Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

Patient StoriesGuest UserJuly 20, 2023patient story, rare diseases, chronic illness, Autoimmune, multiple sclerosisComment

Life Experiences Series: Mental health, and resiliency after incarceration

Patient StoriesGuest UserJune 13, 2023life experiences, patient story, mental health Comments

Tales from a Diagnostic Odyssey: Insights from a personal journey

Patient StoriesGuest UserMay 18, 2023patient story, chr, digestive healthComment

The Things They Don't Tell You About Participating in a Clinical Trial

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

Patient StoriesGuest UserApril 24, 2023patient story, advocacyComment

The Importance of Exercise with CF

Emily, an adult living with CF, talks about her changing relationship with exercise

Patient StoriesGuest UserSeptember 5, 2019physical therapy, exercise, cystic fibrosis, patient storyComment

Back to School: College and Grad School Edition

Paul, an adult with PI, draws from his experience attending college and starting law school to share six great tips for navigating higher education while managing a condition. Best of luck in your law school adventure, Paul!

Patient StoriesGuest UserAugust 30, 2019college, patient story, Primary Immunodeficiency, care team, schoolComment

Studying Abroad with Cystic Fibrosis

Celeste talks about her experience traveling across the world while managing her cystic fibrosis.

Patient StoriesGuest UserJuly 25, 2019travel, cystic fibrosis, friends, patient story Comment

Ron, on determination, faith, and following his path

We are excited to feature Ron’s story of how his cystic fibrosis diagnosis in his 40s answered some questions he had his whole life. Thank you, Ron, for inspiring us with your message of positivity and for your service to our country and your community!

Patient StoriesGuest UserJune 20, 2019cystic fibrosis, patient story Comment

Patient feature: Celeste, who can't wait for 2019

Celeste is a busy, happy UT Austin student studying public health. She’s also a CF patient, and a Folia intern. In this post, Celeste shares her plans for a healthy, successful, and exciting 2019!

Patient StoriesNell Meosky LuoDecember 29, 2018cystic fibrosis, college, patient story, exercise Comment