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The Folia Blog

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About Folia
Traveling Through Diagnoses: Bella’s Journey to PNH
Patient Stories Cortlynn Danby 4/23/25 Patient Stories Cortlynn Danby 4/23/25

Traveling Through Diagnoses: Bella’s Journey to PNH

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Margaret’s Story: Living with C3G
Patient Stories Cortlynn Danby 3/24/25 Patient Stories Cortlynn Danby 3/24/25

Margaret’s Story: Living with C3G

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Reflections on Hezzie - A beautiful life, and the people who stay with you
Patient Stories, Community Nell Meosky Luo 3/13/25 Patient Stories, Community Nell Meosky Luo 3/13/25

Reflections on Hezzie - A beautiful life, and the people who stay with you

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Women’s Health Deserves More: Addressing the Gender Gap in Research
Patient Stories, Community Cortlynn Danby 3/8/25 Patient Stories, Community Cortlynn Danby 3/8/25

Women’s Health Deserves More: Addressing the Gender Gap in Research

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The Life I Get to Live: Kya’s PNH Journey
Patient Stories, Community Jordan Owashi 3/6/25 Patient Stories, Community Jordan Owashi 3/6/25

The Life I Get to Live: Kya’s PNH Journey

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Anxiety About Painting A Future With Lupus
Patient Stories, Community Shanelle Gabriel 3/5/25 Patient Stories, Community Shanelle Gabriel 3/5/25

Anxiety About Painting A Future With Lupus

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Asbestos Q&A: The Importance of Understanding the Lasting Effects of Asbestos Exposure
Patient Stories Team Folia with Asbestos.com 2/25/25 Patient Stories Team Folia with Asbestos.com 2/25/25

Asbestos Q&A: The Importance of Understanding the Lasting Effects of Asbestos Exposure

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Vicky’s Story: Mother first, therapist second, and lupus warrior last. 
Patient Stories Cortlynn Danby 1/30/25 Patient Stories Cortlynn Danby 1/30/25

Vicky’s Story: Mother first, therapist second, and lupus warrior last. 

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From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey
Patient Stories Cortlynn Danby 12/30/24 Patient Stories Cortlynn Danby 12/30/24

From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey

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How to Find PNH Support When It Feels Like You’re One in a Million
Condition Information, Patient Stories Selena Burland 11/8/24 Condition Information, Patient Stories Selena Burland 11/8/24

How to Find PNH Support When It Feels Like You’re One in a Million

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Megan's Experience with POTS, EDS, and MCAS (Part 2)
Patient Stories The Folia Health Research Team 10/27/23 Patient Stories The Folia Health Research Team 10/27/23

Megan's Experience with POTS, EDS, and MCAS (Part 2)

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Community Spotlight: Megan's Experiences with POTS, Ehlers-Danlos, and MCAS (Part 1)
Patient Stories The Folia Health Research Team 10/24/23 Patient Stories The Folia Health Research Team 10/24/23

Community Spotlight: Megan's Experiences with POTS, Ehlers-Danlos, and MCAS (Part 1)

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Life Experiences Series: Making the most of yesterday, today, and tomorrow
Patient Stories The Folia Health Research Team 7/20/23 Patient Stories The Folia Health Research Team 7/20/23

Life Experiences Series: Making the most of yesterday, today, and tomorrow

Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

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Life Experiences Series: Mental health, and resiliency after incarceration
Patient Stories The Folia Health Research Team 6/13/23 Patient Stories The Folia Health Research Team 6/13/23

Life Experiences Series: Mental health, and resiliency after incarceration

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Tales from a Diagnostic Odyssey: Insights from a personal journey
Patient Stories The Folia Health Research Team 5/18/23 Patient Stories The Folia Health Research Team 5/18/23

Tales from a Diagnostic Odyssey: Insights from a personal journey

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The Things They Don't Tell You About Participating in a Clinical Trial
Patient Stories The Folia Health Research Team 4/24/23 Patient Stories The Folia Health Research Team 4/24/23

The Things They Don't Tell You About Participating in a Clinical Trial

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

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Lighting Your Own Path: Living with the consequences of someone else's actions
Patient Stories The Folia Health Research Team 2/2/23 Patient Stories The Folia Health Research Team 2/2/23

Lighting Your Own Path: Living with the consequences of someone else's actions

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Folia's Week of Giving Thanks: A Community Spotlight on Latoya
Patient Stories The Folia Health Research Team 11/22/22 Patient Stories The Folia Health Research Team 11/22/22

Folia's Week of Giving Thanks: A Community Spotlight on Latoya

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You Know Your Own Body: Diagnostic Odyssey of Autoimmune Conditions
Patient Stories The Folia Health Research Team 8/12/20 Patient Stories The Folia Health Research Team 8/12/20

You Know Your Own Body: Diagnostic Odyssey of Autoimmune Conditions

Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.

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Coming together over Corona
Patient Stories The Folia Health Research Team 3/14/20 Patient Stories The Folia Health Research Team 3/14/20

Coming together over Corona

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.

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