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Recent HRO Publications

  • NKF Folia Poster

    Real-time and Short Recall of Flares in PNH, Captured through Longitudinal Home-Reported Outcomes

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  • ASN Folia IgAN poster

    Common vs Frequent: Assessing variable disease presentation in IgAN and C3G, through home-reported outcomes and patient-reported endpoints analyses

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  • Exploring burden in rare diseases: examining neuropsychological symptoms, flares, and sleep quality

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Capture Patient Experience Data Others Can't Reach

High-frequency, longitudinal Home Reported Outcomes (HROs) connect patient quality of life with treatments and symptoms delivering the real-world evidence your strategy needs.

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Recent Press

Press Releases
Folia Health Launches “BRAVE-PWS” Study to Better Understand the Real-World Experience of Prader-Willi Syndrome Caregivers
Folia Health Launches “BRAVE-PWS” Study to Better Understand the Real-World Experience of Prader-Willi Syndrome Caregivers

BOSTON, April 15, 2026 (GLOBE NEWSWIRE) -- Folia Health announces the launch of Burden and Real-world Assessment of Caregiver Voice and Experiences in Prader-Willi syndrome (BRAVE-PWS), a fully remote observational study, sponsored by Soleno Therapeutics (NASDAQ: SLNO), designed to better understand the real-world experience of caregivers supporting individuals with Prader-Willi syndrome (PWS)…

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Folia Health Launches App-Based Study to Unlock Novel Real-World Evidence of Symptom Burden and Unmet Need for Patients and Caregivers in CIDP
Folia Health Launches App-Based Study to Unlock Novel Real-World Evidence of Symptom Burden and Unmet Need for Patients and Caregivers in CIDP

BOSTON, April 7, 2026 (GLOBE NEWSWIRE)-- Folia Health today announced a collaboration with argenx to launch a first-of-its-kind, at-home observational real-world evidence initiative supporting individuals living with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP)…

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Folia Health Expands Its Rare Renal Disease Research with a New C3G Study to Assess Real-World Disease Impact
Folia Health Expands Its Rare Renal Disease Research with a New C3G Study to Assess Real-World Disease Impact

BOSTON, April 10, 2025 (GLOBE NEWSWIRE) -- Folia Health launches enrollment for an innovative, at-home real-world evidence initiative for individuals with C3 glomerulopathy (C3G). This initiative, conducted in collaboration with Novartis Pharmaceuticals Corporation, aims to directly measure patient-defined burden and evaluate the impact of various treatments on quality of life…

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Folia Health and Inspire are Partnering to Bring Personalized Home Health Observations to the Forefront of Patient Focused Drug Development Research
Folia Health and Inspire are Partnering to Bring Personalized Home Health Observations to the Forefront of Patient Focused Drug Development Research

BOSTON, April 30, 2025 (GLOBE NEWSWIRE) -- Folia Health, the pioneer of patient-driven Home Reported Outcomes (HRO), has partnered with Inspire, the world's leading online health community and real-world data platform, to uniquely empower patients and caregivers with the opportunity to contribute a highly personalized form of structured at-home health observations data to accelerate patient-focused drug development research…

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Novartis Pharmaceuticals and Folia Health Partner on Innovative App-Based Study to Assess Real-World Experience of IgA Nephropathy
Novartis Pharmaceuticals and Folia Health Partner on Innovative App-Based Study to Assess Real-World Experience of IgA Nephropathy

BOSTON, March 13, 2025 (GLOBE NEWSWIRE) -- Today, Folia Health and Novartis Pharmaceuticals, Inc. proudly announce their collaboration on an innovative, at-home observational real-world evidence initiative supporting individuals with IgA nephropathy. This ground-breaking study will leverage Folia’s cutting-edge technology platform…

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