Caring for someone with PWS?
You're with them for the everyday, the small shifts and patterns between appointments. Most of it never makes it into a chart.
Folia is a free app for writing it down as it happens — for them, and for you. You can also choose to explore optional research you can do remotely from the app. Learn more here.
Download Folia for free and use invite code “PWS-26”
Why tracking matters for PWS?
PWS care is spread across a lot of people. An endocrinologist managing growth hormone. A dietitian. A behavioral specialist. A sleep clinic. Teachers and therapists who see hours of the day you don't.
Each of them sees one slice, a few times a year. You see all of it, every day. But months of that come down to a fifteen-minute visit, and the details that would help most are usually the hardest ones to recall on the spot.
Tracking what you notice, when you notice it, means you walk in with more than memory.
What families track
Everyone tracks something different. These are the ones PWS families tell us come up most.
Food-seeking & hyperphagia
Sleep
Mood & anxiety
Skin picking
Growth hormone & medications
Behavior and transitions
Your own wellbeing as a caregiver
Get started free today.
Use invite code “PWS-26” when you sign up.
Want your lived experience to go further?
The everyday details you track can help answer bigger questions about PWS and about caregiving. Research is always optional, and you can do it remotely from the Folia app.
How it works
Capture your daily reality
through tracking
See your insights and validate what you feel
Keep a source of truth that grows with you
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.
Frequently Asked Questions
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Yes. Downloading and using Folia is free and always will be.
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Both. You can track for the individual with PWS and for yourself in the same app, and switch between profiles whenever you need to.
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No. Research is always optional, and you can use Folia entirely on your own and your data will never be shared without your consent.
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Yes, your data belongs to you. You choose whether you want to share it anonymously with research efforts.
See more about privacy here.
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Yes. Folia can be used while you're still searching for a diagnosis.
Many of our users have found Folia to be a helpful tool in navigating their diagnostic journey.
Download Folia for free and start with what you noticed today.
Use invite code “PWS-26” when you sign up.