Welcome to the PNH Mosaic Collective Insights hub!

You can think of this hub as a home base for sharing and receiving information from your Mosaic research collective. You can find questions other Mosaic members want your insights on, as well as aggregate insights based on what’s tracked in Folia and shared in the Google forms. We’ll shoot you an email whenever we update this hub!

Collective Insights

These insights are based on what’s been tracked in Folia in addition to anecdotes shared in the monthly surveys and Google forms. Anything with an orange border has been updated with new insights from the community!


Symptoms & Symptom Management

Add your insights
Add your insights
Add your insights

Community Questions

Share your insights or upvote open questions to become Collective Insights!

How do people deal with muscle spasms?
Does anyone have experience with new symptoms or flares years down the road?

Women’s Health

Add your insights

Health Tracking & Tracking Tips From The Collective

Add your insights

Flares

Flare Insights Coming Soon!
What do you want to know from your community?

Submit questions you want to see
future Collective Insights on!

Community Questions

Share your insights or upvote open questions to become Collective Insights!

How would you describe your flares? Do you know what triggers them?

Social Life

Social Life Insights Coming Soon!
What do you want to know from your community?

Submit questions you want to see
future Collective Insights on!

Community Questions

Share your insights or upvote open questions to become Collective Insights!

How do you cope with planning your social life when you don't know when you'll have good days?