Caring for someone with PWS?
Track both your journeys in one free app. Join us for a virtual info session to see how Folia helps PWS families capture the full picture of daily life.
Join our free virtual info session
Tuesday, October 20 • 7:00 pm EST
What we'll cover
In this session, we’ll show you how Folia fits into everyday life with PWS, for the person you care for and for you.
What PWS families track day to day
From sleep and mood to behavior, transitions, and medications, see what other families keep track of and how to get started.
Turning tracking into insights
See how your entries turn into visual patterns over time that you can bring to appointments.
Optional caregiver research opportunity
Learn about a study focused on the caregiver experience, and how you can take part if you choose. Learn more.
What families track
Everyone tracks something different. These are the ones PWS families tell us come up most.
Food-seeking & hyperphagia
Sleep
Mood & anxiety
Skin picking
Growth hormone & medications
Behavior and transitions
Your own wellbeing as a caregiver
Don’t want to wait to start tracking?
Download Folia for free and use invite code PWANY when you sign up.
Want your lived experience to go further?
The everyday details you track can help answer bigger questions about PWS and about caregiving. Research is always optional, and you can do it remotely from the Folia app.
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.
Frequently Asked Questions
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Yes. Downloading and using Folia is free and always will be.
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Both. You can track for the individual with PWS and for yourself in the same app, and switch between profiles whenever you need to.
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No. Research is always optional, and you can use Folia entirely on your own and your data will never be shared without your consent.
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Yes, your data belongs to you. You choose whether you want to share it anonymously with research efforts.
See more about privacy here.
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Yes. Folia can be used while you're still searching for a diagnosis.
Many of our users have found Folia to be a helpful tool in navigating their diagnostic journey.