Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

Jennifer and her service dog, Gemma

Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.

Coronavirus has created a new normal: social distancing, childcare disruptions, self quarantining, constant hand sanitizing, and risk levels changing by the hour. However, many of these experiences are the everyday reality of people living with underlying health conditions.

Myra, mom to two children with CF, shares some of the wisdom she has acquired over the years, and what she hopes people take away from this experience to help everyone live a healthier life.

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.

Breck, a CF mom, shares practical tips on navigating coronavirus with an underlying health condition and surviving a self quarantine.

Lynsey, mom to 18-month-old Landon, shares how tracking on Folia ends each day with a boost of positivity, enables her to precisely tell their whole story, and provides a way to give back to the CF community. She is hopeful about the future of healthcare which taps into the perspectives of patients and caregivers at home.

Anna is a student researcher at Tufts University, an aspiring physician, and an adult living with primary immunodeficiency. In this blog, Anna shares with Rebekah what has grounded her as she navigates life with a recent diagnosis of her specific mutation.

Ashley is mom to Finn, who was diagnosed with PI in April 2019. In this blog post, she shares with Rebekah her initial reactions to Finn’s diagnosis, drive to the appointments, Infusion Thursdays, and the village of support. 

Christina, Head of Growth of Folia Health, shares about her family’s recent hospitalization.