Help your CIDP patients be seen between visits
Through the CIDP Compass Study, patients or their caregivers track symptoms, treatments, and lifestyle in the Folia app, so the everyday burden of CIDP is seen and understood. No required visits, no changes to treatment.
Patients can also download the Folia app and enter the invite code: COMPASS-CL
About the study
The purpose of the CIDP Compass Study is to collect longitudinal, caregiver-reported data to characterize the everyday burden and well-being of individuals with CIDP. Due to the remote nature of this study, it is open to nationwide enrollment in the U.S.
Patients see real-time insights about their health, and researchers see the everyday experience of CIDP.
Exclusion criteria
Currently receiving efgartigimod alfa and hyaluronidase-qvfc (Vyvgart Hytrulo)
• Actively participating in a clinical trial for CIDP
Inclusion criteria
Diagnosis of CIDP, regardless of symptom or treatment history
Adult aged 18 or older
US-based with a proficient understanding of and ability to comprehend study materials
Diagnosis of CIDP will be confirmed through self-reported screening procedures and patient- or caregiver-supplied documentation. Confirmation of diagnosis for each participant will be reviewed by the Folia Health study team as part of standard validation procedures.
How participants contribute
Weekly symptom & treatment tracking on Folia
Participants get real-time insights about their health.
Respond to short monthly check-in surveys
Receive up to $660 for completing study activities
How to Get Involved
Partner with Folia to advance CIDP insights in and outside the clinic
In the clinic
Share study opportunity with patients in clinic or virtually
In the community
Participation in paid patient-facing community events e.g., webinars, Q&As
In the field
Co-authorship opportunities, such as presentations, panels, and manuscripts
Start referring patients and caregivers
Share your contact information and our team will follow up with everything you need, including patient-facing recruitment flyers for your clinic.
Or direct patients/caregivers to the Folia app and use invite code: COMPASS-CL
For questions, please reach out to: [email protected]
IRB: North Star Review Board (Protocol NB600386)