Take control of your CMS journey
Symptoms of congenital myasthenic syndromes (CMS) can change hour to hour and are often invisible to others, but the impact is real.
Whether you live with CMS or care for someone who does, Folia helps you capture your experiences in real time and unlock patterns you can use with your care team.
Download Folia and use code “CMS” when you register
Living with CMS or caring for someone who is?
We want to hear from you.
Fill out the form to be contacted for a compensated hour long interview.
Why tracking matters for CMS?
CMS is a neuromuscular condition that causes fatigable muscle weakness — difficulty chewing and swallowing, weakness in the limbs, drooping eyelids, and fatigue that builds with exertion. These symptoms fluctuate and can be hard to describe in a few minutes during a clinic visit.
Your daily experience is data. Over time it becomes evidence you can use to understand patterns, talk with your care team, and set goals. Tracking allows you to capture that evidence. Folia makes it easier than ever.
How it works
While static trackers and discussion guides exist (e.g., PDFs you can print), Folia is the first and only interactive tool that captures, visualizes, and lets patients (or caregivers) reflect on their daily CMS experience over time.
Capture your daily reality
through tracking
See your insights and validate what you feel
Keep a source of truth that grows with you
Make data-driven changes
about your care
Get started free today.
Use invite code “CMS” when you sign up
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.
Your data is not just numbers, its evidence.
You deserve decisions grounded in your experience.
Prepare for Clinic Visits
Export your symptom timeline to share with your care team showing real patterns instead of relying on memory alone.
Set Personal Goals
Whether exercising more confidently, reducing fatigue days, or experimenting safely with treatment timing, your data guides what’s meaningful to you.
Measure Treatment Impact
Track how adjustments to infusions, medications, or therapies actually correlate with changes in your strength, stamina, or comfort.
Download Folia and gain control today.
Use invite code “CMS” when you sign up
Frequently Asked Questions
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Anything that affects how you feel or function: Things like fatigue, muscle weakness, swallowing or breathing changes, ptosis, and how exertion affects you.
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Instead of saying “it felt like I was worse last month,” you can show your symptom timeline with data that illustrates patterns and responses to treatment adjustments.
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Yes, your data belongs to you. You choose whether you want to share it anonymously with research efforts.
See more about privacy here.
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Yes! Folia allows you to create both a personal and caregiver profile so you can easily toggle between who you are tracking for!