Track the everyday changes in DMD.
Whether you care for someone with DMD or live with it yourself, Folia helps you capture what you notice each day and turn it into patterns you can bring to your care team.
Duchenne muscular dystrophy (DMD) changes over time, and the small shifts in everyday life matter.
Download Folia and use code “DMD-26” when you register
Help shape the future of DMD research.
We're talking with families affected by Duchenne to better understand daily life with DMD: what's hard, what helps, and what matters most to you. Tell us a bit about your experience, and our team may reach out to set up a conversation.
Why tracking matters for MMN?
DMD causes muscle weakness that progresses over time, often starting in early childhood with falls, trouble on stairs, and tiring faster than other kids.
These changes happen gradually and are hard to sum up in a short clinic visit. Your daily experience is data, and Folia turns it into evidence you can bring to your care team.
If you're living with DMD
See how your energy, strength, and routines change over time, and walk into appointments with your own record of what's working and what isn't.
If you care for someone with DMD
Keep falls, sleep, mood, and medication changes in one place, so you're not relying on memory when the care team asks how things have been.
While static trackers and discussion guides exist (e.g., PDFs you can print), Folia is the first and only interactive tool that captures, visualizes, and lets patients (or caregivers) reflect on their daily DMD experience over time.
How it works
Capture daily reality through tracking
See your insights and validate what you feel
Keep a source of truth that grows with you
Make data-driven changes about care
Get started free today.
Use invite code DMD-26 when you sign up
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.
Your data is not just numbers, it's evidence.
You deserve decisions grounded in your experience.
Prepare for Clinic Visits
Share a timeline with your care team instead of relying on memory.
Set Personal Goals
Steadier energy, a stretching routine, saving strength for what matters: your data shows what's working.
Measure Treatment Impact
See how medication or therapy changes line up with how each day goes.
Download Folia and gain control today.
Use invite code DMD-26 when you sign up
Frequently Asked Questions
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Anything that affects daily life: falls, stairs, getting up from the floor, how far walking feels manageable, use of a wheelchair or other support, arm and hand tasks, fatigue, sleep and breathing, mood and behavior, medication side effects, and therapy or stretching routines.
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Instead of saying “he seems to be falling more lately,” you can show a timeline with data that illustrates what changed and when.
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Yes, your data belongs to you. You choose whether you want to share it anonymously with research efforts.
See more about privacy here.
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Yes! Folia allows you to create both a personal and caregiver profile so you can easily toggle between who you are tracking for!
