Living with DMD or caring for someone who is? We want to hear from you.
Folia is planning a new DMD research study. To help guide it, we are inviting people with DMD and their caregivers to a paid, one-hour interview.
Who can take part
These interviews are a first step. What people share will help make the study useful for those living with DMD. Fill out the form to be contacted.
To take part, you must be:
- An adult aged 18+ who has been diagnosed with DMD, or an adult (18+) caregiver to a child aged 2 or older who has been diagnosed with DMD
- Willing to join a one-hour Zoom video interview with our research study team
- Able to share documentation confirming your or your child's diagnosis at the start of the interview call
In return for your time, you will receive a $125 Visa e-gift card.
Prefer to start by tracking?
Folia Health is a free app. It helps you keep track of your DMD day to day.
Use invite code “DMD-CC” when you sign up
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.