What a journey this eczema experience has been so far…My sunshine baby, T, is nearly 15 months old. He was a happy surprise as our second child after a fertility struggle for our first. T was born on a sunny day in June and has been a truly joyful presence in the lives of everyone around him ever since. He is usually grinning, chortling, and dancing, despite being so uncomfortable much of the time.

Eddie’s life has been an adventure. His diagnoses of Multiple Sclerosis and Pulmonary Fibrosis are not stopping him from seeking the joy in every day.

What is it actually like to participate in a clinical trial? What do other people who have participated in trials think about the whole ordeal?

Jennifer and her service dog, Gemma

Katie has a background in gerontology and psychology. During her long diagnostic journey, she has learned to advocate for herself with the support of others.

Coronavirus has created a new normal: social distancing, childcare disruptions, self quarantining, constant hand sanitizing, and risk levels changing by the hour. However, many of these experiences are the everyday reality of people living with underlying health conditions.

Myra, mom to two children with CF, shares some of the wisdom she has acquired over the years, and what she hopes people take away from this experience to help everyone live a healthier life.

Paul, an adult living with CVID and the original inspiration for Folia, shares how the self-quarantine has brought him opportunity for connection.