Join our remote CIDP research study today!
Share what life with CIDP is really like between clinic visits so care can better reflect what you as a patient or caregiver need most.
Interested? Let’s see if this study is a match
Download the Folia app and use the invite
code “COMPASS” to sign up
What is CIDP?
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare condition in which the body's immune system causes damage to the peripheral nervous system, leading to progressive muscle weakness and loss of feeling that can impact patient's independence and overall quality of life.
Gogia B, Rocha Cabrero F, Khan Suheb MZ, et al. Chronic Inflammatory Demyelinating Polyradiculoneuropathy. [Updated 2024 Mar 4]. In: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2025 Jan-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK563249/
Why are we researching CIDP?
Our aim is to make sure the full picture of living with CIDP is seen and understood. Not just what clinicians report, not just what lab values say, but how you feel after taking a trip to the grocery store, or what you have to miss when you’re feeling exhausted. We know CIDP affects all areas of your life, and by sharing your experiences with researchers, you can help advance the future of CIDP care to better reflect what living with CIDP is really like.
As with all of our research programs, you’ll never have a required doctor’s visit or treatment, and everything can be done from home.
Interested in joining?
Living with CIDP?
Join this study if your experience includes the following:
Diagnosis of CIDP, regardless of symptom or treatment history
Adult aged 18 or older
US-based with a proficient understanding of and ability to comprehend study materials
NOT currently receiving efgartigimod alfa or
efgartigimod alfa and hyaluronidase-qvfc (Vyvgart or Vyvgart Hytrulo)
NOT actively participating in a clinical trial for CIDP
Caring for someone with CIDP?
Join this study if your experience includes the following:
Serve as the primary caregiver of an adult living with a diagnosis of CIDP, regardless of symptom or treatment history
Adult aged 18 or older
US-based with a proficient understanding of and ability to comprehend study materials
NOT currently receiving efgartigimod alfa or
efgartigimod alfa and hyaluronidase-qvfc (Vyvgart or Vyvgart Hytrulo)
NOT actively participating in a clinical trial for CIDP
Diagnosis of CIDP will be confirmed through self-reported screening procedures and patient- or caregiver-supplied documentation. Confirmation of diagnosis for each participant will be reviewed by the Folia Health study team as part of standard validation procedures.
How it works
Help shape the future of CIDP care all from the comfort of your home.
Share weekly updates about your experience
See real-time insights about your health.
Respond to short monthly check-ins
Complete these study activities to get up to $100/month*
*
How to enroll
Take our 30 second qualification survey
If the study looks like a fit, you’ll be guided to download the Folia Health app.
Use invite code “COMPASS” at signup to ensure you’re enrolled into the study
Review and sign the consent form (you’ll see it right after you create your account)
Reach out to [email protected] with any questions!
