Take control of your FSGS journey
Symptoms of focal segmental glomerulosclerosis (FSGS) can change from week to week, and much of what you feel never shows up in a lab result. But it matters.
Folia helps you capture what you experience in real time, turn it into meaningful patterns, and use that information to inform your care and personal goals.
Download Folia and use invite code “FSGS-26”
Living with FSGS or caring for a child with FSGS?
Help shape what's known about FSGS.
Track symptoms and flare-ups in the FSGS PULSE Study, see your patterns over time, and help advance FSGS research, all from home.
Why does tracking matter for FSGS?
FSGS is a rare kidney disease in which scarring forms in the glomeruli, the tiny filters inside your kidneys. It can bring swelling, fatigue, weight changes, and protein in your urine, and it moves differently from one person to the next. Between appointments, most of what you notice goes unrecorded.
Your daily experience, what you actually feel today, is data. When collected over time, this data becomes evidence you can use to understand patterns, talk with your care team, and set goals based on what matters most to you.
How it works
While static trackers and discussion guides exist (e.g., PDFs you can print), Folia is the first and only interactive tool that captures, visualizes, and lets patients (or caregivers) reflect on their daily FSGS experience over time.
Capture your daily reality
through tracking
See your insights and validate what you feel
Keep a source of truth that grows with you
Make data-driven changes
about your care
Get started free today.
Use invite code “FSGS-26” when you sign up
Get exclusive access to our renal resource center?
What’s included:
✓ Recipes and grocery lists curated by a registered renal dietitian
✓ Access to past event recordings from advocates, dietitians, and behavioral health specialists
✓ Tips on tracking your chronic kidney disease through Folia
… and so much more
A peak at content you could access…
What our users are saying…
So simple to use, very intuitive. Keeps track of what you want when you want it to. Extensive and at your fingertips.
- Matt G.
When I started using Folia, I was missing key baselines in my health history and wanted tools to better understand my [PNH]. Over time, the platform gave me clarity on my daily symptom patterns and how my treatments and supplements were impacting me. It helped me stay accountable to my routines, understand my energy levels, and provide targeted information to my doctor that directly informs decisions about my care. With clarity comes confidence.
- Kya
“I've been with Folia Health for almost 2 years now. Tracking every single thing that I need that's going on in my life medications, moods, situations etc. If you can think of it, you can track it.”
- Tyla R.
Your data is not just numbers, it's evidence.
You deserve decisions grounded in your experience.
Prepare for Clinic Visits
Export your symptom timeline to share with your care team showing real patterns instead of relying on memory alone.
Set Personal Goals
Whether that's fewer swollen days, steadier energy, or sticking with your diet plan, your data guides what's meaningful to you."
Measure Treatment Impact
Track how changes your care team makes to your medications or plan line up with your swelling, energy, and how you feel day to day.
Download Folia and gain control today.
Use invite code “FSGS-26” when you sign up
Frequently Asked Questions
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Anything that affects how you feel or function: swelling, weight changes, fatigue, blood pressure, changes in your urine, appetite, sleep, and mood, tracked consistently over time.
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Instead of saying “it felt like I was worse last month,” you can show your symptom timeline with data that illustrates patterns and responses to treatment adjustments.
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Yes, your data belongs to you. You choose whether you want to share it anonymously with research efforts.
See more about privacy here.
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Yes! Folia allows you to create both a personal and caregiver profile so you can easily toggle between who you are tracking for!