The experience of living with SCD often involves dealing with pain, fatigue, and other symptoms that can be hard to measure or describe. These complex symptoms, coupled with the systematic issues associated with receiving high-quality care as a person of color, make it difficult for sickle cell warriors to get the care that they need and deserve.
Through enabling warriors and their family members to create their own records of what's going on, what they're feeling, and how they're responding to treatment, our team at Folia hopes to help make great SCD care simpler to achieve.