The Folia Blog ☰ All Posts About Folia Research Condition Information All Conditions Autoimmune Disease Eczema Chronic Kidney Disease IgAN C3G Lupus PNH Sickle Cell Disease Cystic Fibrosis Cancer Patient + Caregiver Chronicles All Chronicles Autoimmune Disease Eczema Chronic Kidney Disease IgAN C3G Lupus PNH Sickle Cell Disease Cystic Fibrosis Cancer Folia Guides Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 PNH Treatment Journeys: Real Stories from Patients Read More Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Advice to the newly diagnosed Read More Condition Information, Patient + Caregiver Chronicles Shanelle Gabriel 2/12/26 Condition Information, Patient + Caregiver Chronicles Shanelle Gabriel 2/12/26 Spoons, Swipes & Self-Worth: Dating Beyond the “I’m Too…” Narrative Read More Patient + Caregiver Chronicles, Condition Information Cortlynn Danby 2/3/26 Patient + Caregiver Chronicles, Condition Information Cortlynn Danby 2/3/26 Valentine’s Day Date Ideas That Work with Your Chronic Illness Read More Condition Information, Patient + Caregiver Chronicles Aani Sinnott 12/23/25 Condition Information, Patient + Caregiver Chronicles Aani Sinnott 12/23/25 Finding Purpose in the Paths We Never Planned Read More Condition Information, Patient + Caregiver Chronicles Selena Burland 11/26/25 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/26/25 First Year of Motherhood post BMT Read More Folia Guides, Patient + Caregiver Chronicles Cortlynn Danby 8/22/25 Folia Guides, Patient + Caregiver Chronicles Cortlynn Danby 8/22/25 Lauren’s Story: From Rare Disease to a Renewed Sense of Purpose Read More Patient + Caregiver Chronicles Cortlynn Danby 5/23/25 Patient + Caregiver Chronicles Cortlynn Danby 5/23/25 From Track to Treatment: Brandon’s Battle with AAV Read More Patient + Caregiver Chronicles, Condition Information Brandi Lewis 5/22/25 Patient + Caregiver Chronicles, Condition Information Brandi Lewis 5/22/25 Can I Ever Feel Good Living With PNH? Here’s What I Learned Read More Patient + Caregiver Chronicles Cortlynn Danby 5/15/25 Patient + Caregiver Chronicles Cortlynn Danby 5/15/25 Growing Through What No One Else Can See Read More Patient + Caregiver Chronicles Cortlynn Danby 4/23/25 Patient + Caregiver Chronicles Cortlynn Danby 4/23/25 Traveling Through Diagnoses: Bella’s Journey to PNH Read More Patient + Caregiver Chronicles Cortlynn Danby 3/24/25 Patient + Caregiver Chronicles Cortlynn Danby 3/24/25 Margaret’s Story: Living with C3G Read More Patient + Caregiver Chronicles Nell Meosky Luo 3/13/25 Patient + Caregiver Chronicles Nell Meosky Luo 3/13/25 Reflections on Hezzie - A beautiful life, and the people who stay with you Read More Patient + Caregiver Chronicles, Research Cortlynn Danby 3/8/25 Patient + Caregiver Chronicles, Research Cortlynn Danby 3/8/25 Women’s Health Deserves More: Addressing the Gender Gap in Research Read More Patient + Caregiver Chronicles Jordan Owashi 3/6/25 Patient + Caregiver Chronicles Jordan Owashi 3/6/25 The Life I Get to Live: Kya’s PNH Journey Read More Patient + Caregiver Chronicles Shanelle Gabriel 3/5/25 Patient + Caregiver Chronicles Shanelle Gabriel 3/5/25 Anxiety About Painting A Future With Lupus Read More Patient + Caregiver Chronicles Cortlynn Danby 1/30/25 Patient + Caregiver Chronicles Cortlynn Danby 1/30/25 Vicky’s Story: Mother first, therapist second, and lupus warrior last. Read More Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey Read More Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Life Post- Bone Marrow Transplant – How to Find Yourself Again Read More Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 How to Find PNH Support When It Feels Like You’re One in a Million Read More Older Posts
Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 PNH Treatment Journeys: Real Stories from Patients Read More
Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Condition Information, Patient + Caregiver Chronicles Cortlynn Danby 3/6/26 Advice to the newly diagnosed Read More
Condition Information, Patient + Caregiver Chronicles Shanelle Gabriel 2/12/26 Condition Information, Patient + Caregiver Chronicles Shanelle Gabriel 2/12/26 Spoons, Swipes & Self-Worth: Dating Beyond the “I’m Too…” Narrative Read More
Patient + Caregiver Chronicles, Condition Information Cortlynn Danby 2/3/26 Patient + Caregiver Chronicles, Condition Information Cortlynn Danby 2/3/26 Valentine’s Day Date Ideas That Work with Your Chronic Illness Read More
Condition Information, Patient + Caregiver Chronicles Aani Sinnott 12/23/25 Condition Information, Patient + Caregiver Chronicles Aani Sinnott 12/23/25 Finding Purpose in the Paths We Never Planned Read More
Condition Information, Patient + Caregiver Chronicles Selena Burland 11/26/25 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/26/25 First Year of Motherhood post BMT Read More
Folia Guides, Patient + Caregiver Chronicles Cortlynn Danby 8/22/25 Folia Guides, Patient + Caregiver Chronicles Cortlynn Danby 8/22/25 Lauren’s Story: From Rare Disease to a Renewed Sense of Purpose Read More
Patient + Caregiver Chronicles Cortlynn Danby 5/23/25 Patient + Caregiver Chronicles Cortlynn Danby 5/23/25 From Track to Treatment: Brandon’s Battle with AAV Read More
Patient + Caregiver Chronicles, Condition Information Brandi Lewis 5/22/25 Patient + Caregiver Chronicles, Condition Information Brandi Lewis 5/22/25 Can I Ever Feel Good Living With PNH? Here’s What I Learned Read More
Patient + Caregiver Chronicles Cortlynn Danby 5/15/25 Patient + Caregiver Chronicles Cortlynn Danby 5/15/25 Growing Through What No One Else Can See Read More
Patient + Caregiver Chronicles Cortlynn Danby 4/23/25 Patient + Caregiver Chronicles Cortlynn Danby 4/23/25 Traveling Through Diagnoses: Bella’s Journey to PNH Read More
Patient + Caregiver Chronicles Cortlynn Danby 3/24/25 Patient + Caregiver Chronicles Cortlynn Danby 3/24/25 Margaret’s Story: Living with C3G Read More
Patient + Caregiver Chronicles Nell Meosky Luo 3/13/25 Patient + Caregiver Chronicles Nell Meosky Luo 3/13/25 Reflections on Hezzie - A beautiful life, and the people who stay with you Read More
Patient + Caregiver Chronicles, Research Cortlynn Danby 3/8/25 Patient + Caregiver Chronicles, Research Cortlynn Danby 3/8/25 Women’s Health Deserves More: Addressing the Gender Gap in Research Read More
Patient + Caregiver Chronicles Jordan Owashi 3/6/25 Patient + Caregiver Chronicles Jordan Owashi 3/6/25 The Life I Get to Live: Kya’s PNH Journey Read More
Patient + Caregiver Chronicles Shanelle Gabriel 3/5/25 Patient + Caregiver Chronicles Shanelle Gabriel 3/5/25 Anxiety About Painting A Future With Lupus Read More
Patient + Caregiver Chronicles Cortlynn Danby 1/30/25 Patient + Caregiver Chronicles Cortlynn Danby 1/30/25 Vicky’s Story: Mother first, therapist second, and lupus warrior last. Read More
Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 Patient + Caregiver Chronicles Cortlynn Danby 12/30/24 From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey Read More
Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 12/13/24 Life Post- Bone Marrow Transplant – How to Find Yourself Again Read More
Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 Condition Information, Patient + Caregiver Chronicles Selena Burland 11/8/24 How to Find PNH Support When It Feels Like You’re One in a Million Read More
