Recent Blogs
Diagnosed with a rare, invisible disease, Brianne combined her love of golf with advocacy—raising over $110,000 for PNH research and earning national recognition for her decade-long impact.
Recent videos
Dr. Yongen Chang, a board-certified nephrologist and UC Irvine faculty member, discusses the evolving treatment landscape for IgA nephropathy (IgAN) and Complement 3 glomerulopathy (C3G). She highlights promising therapies, the role of patient-reported outcomes, and how lifestyle changes—like diet, exercise, and regular monitoring—support kidney health. The conversation also touches on fertility planning and living well with chronic kidney conditions.
Lupus warriors Marisa Zeppieri, Genny Mack, and Shanelle Gabriel share their journeys, covering diagnosis, self-advocacy, symptom management, and relationships, while emphasizing holistic wellness and self-care.
Find Condition Specific Content
Autoimmune Disease | Lupus | Chronic Kidney Disease | IgAN | C3G | PNH | Eczema
Autoimmune Disease
Blog content
Video content
Lupus warriors Marisa Zeppieri, Genny Mack, and Shanelle Gabriel share their journeys, covering diagnosis, self-advocacy, symptom management, and relationships, while emphasizing holistic wellness and self-care.
When you’re living with an autoimmune condition, every choice you make — especially what you put on your plate — matters. Genny Mack reminds us why local, nutrient-dense produce is so essential: it delivers the vitamins and minerals your body craves to support immune balance and regulate vital systems like digestion and respiration.
This all goes back to understanding the impact of your blood sugar. Hunger cues can be triggered by a variety of factors—like gut imbalances, bacterial overgrowth, and more—which may lead your body to crave extra sugar.
Lupus
Blog content
What is lupus?
Lupus is a chronic autoimmune disease that can affect the joints, skin kidneys, blood cells, brain, heart, and lungs. Approximately 1.5 million Americans have lupus, and about 16,000 people are diagnosed with the condition each year. Globally, more than 5 million people have lupus.
Video content
Lupus warriors Marisa Zeppieri, Genny Mack, and Shanelle Gabriel share their journeys, covering diagnosis, self-advocacy, symptom management, and relationships, while emphasizing holistic wellness and self-care.
When you’re living with an autoimmune condition, every choice you make — especially what you put on your plate — matters. Genny Mack reminds us why local, nutrient-dense produce is so essential: it delivers the vitamins and minerals your body craves to support immune balance and regulate vital systems like digestion and respiration.
When Marisa, aka Lupus Chick, first got her period, she had no idea she had lupus. But it didn’t take long for her to realize her symptoms were much more severe than those of her peers. By tracking her health data, she discovered a clear connection between her menstrual cycle and lupus flare-ups—one of the biggest reasons she encourages everyone to track!
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Blog content
Diagnosed with a rare, invisible disease, Brianne combined her love of golf with advocacy—raising over $110,000 for PNH research and earning national recognition for her decade-long impact.
Video content
In this special patient panel hosted by Folia Health, four incredible women—Brandi, Gail, Jeri, and Selena—share their personal journeys living with Paroxysmal Nocturnal Hemoglobinuria (PNH). From initial diagnosis to treatment decisions, emotional tolls, and life milestones like career, family, and pregnancy, this open and powerful conversation highlights the strength, resilience, and community within the PNH space.
In this video, PNH warriors share who and what they rely on for answers about their condition. For many, it’s their doctors. For others, it might be a parent or caregiver who helps with research, or communities like Facebook groups, nonprofit newsletters, or trusted social media accounts.
This Q+A with Dr. David Dingli, hematologist at Mayo Clinic and PNH expert answers questions about PNH treatments and when to seek them, how to manage PNH long-term, as well as some other tests and symptoms to keep an eye on, antibiotics, and more.
Chronic Kidney Disease
Blog content
Video content
Dr. Yongen Chang, a board-certified nephrologist and UC Irvine faculty member, discusses the evolving treatment landscape for IgA nephropathy (IgAN) and Complement 3 glomerulopathy (C3G). She highlights promising therapies, the role of patient-reported outcomes, and how lifestyle changes—like diet, exercise, and regular monitoring—support kidney health. The conversation also touches on fertility planning and living well with chronic kidney conditions.
When you’re first diagnosed, it’s easy to spiral into blame—wondering what you could have done differently. But the truth is, serious health conditions like IgA Nephropathy aren’t caused by something you did or didn’t do. You did your best then, and you’re doing your best now. And that matters.
For years, Jenna was told her symptoms were just stress-related—maybe even all in her head. But after a decade, she was finally diagnosed with this rare kidney disease. IgA Nephropathy (IgAN) is often missed or misunderstood. By sharing stories like Jenna’s, we hope to raise awareness and help others get the answers they deserve.
IgA nephropathy (IgAN)
Blog content
Video content
Dr. Yongen Chang, a board-certified nephrologist and UC Irvine faculty member, discusses the evolving treatment landscape for IgA nephropathy (IgAN) and Complement 3 glomerulopathy (C3G). She highlights promising therapies, the role of patient-reported outcomes, and how lifestyle changes—like diet, exercise, and regular monitoring—support kidney health. The conversation also touches on fertility planning and living well with chronic kidney conditions.
When you’re first diagnosed, it’s easy to spiral into blame—wondering what you could have done differently. But the truth is, serious health conditions like IgA Nephropathy aren’t caused by something you did or didn’t do. You did your best then, and you’re doing your best now. And that matters.
For years, Jenna was told her symptoms were just stress-related—maybe even all in her head. But after a decade, she was finally diagnosed with this rare kidney disease. IgA Nephropathy (IgAN) is often missed or misunderstood. By sharing stories like Jenna’s, we hope to raise awareness and help others get the answers they deserve.
Complement 3 glomerulopathy (C3G)
Blog content
Eczema
Blog content
Video content
When you’re first diagnosed, it’s easy to spiral into blame—wondering what you could have done differently. But the truth is, serious health conditions like IgA Nephropathy aren’t caused by something you did or didn’t do. You did your best then, and you’re doing your best now. And that matters.
For years, Jenna was told her symptoms were just stress-related—maybe even all in her head. But after a decade, she was finally diagnosed with this rare kidney disease. IgA Nephropathy (IgAN) is often missed or misunderstood. By sharing stories like Jenna’s, we hope to raise awareness and help others get the answers they deserve.
If you’re living with kidney disease, checking food labels is key! Some everyday items—like non-dairy milks, snacks, and even “healthy” options—can have added phosphorus. Dark sodas and fast food? Also big culprits. It’s often the additives doing the most damage.