Recent Blogs

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From Track to Treatment: Brandon’s Battle with AAV
From Track to Treatment: Brandon’s Battle with AAV
Regeneron bought 23andMe…what does this really mean?
Regeneron bought 23andMe…what does this really mean?
Can I Ever Feel Good Living With PNH? Here’s What I Learned
Can I Ever Feel Good Living With PNH? Here’s What I Learned
Growing Through What No One Else Can See
Growing Through What No One Else Can See
How Your Insights Shape PNH Research
How Your Insights Shape PNH Research
Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T
Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T

Recent videos

Find Condition Specific Content

Autoimmune Disease

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Lupus

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Blog
Deciding When and How to Share Your Diagnosis with an Employer
Autoimmune Disease, Lupus
Deciding When and How to Share Your Diagnosis with an Employer
Autoimmune Disease, Lupus
Autoimmune Disease, Lupus
Anxiety About Painting A Future With Lupus
Lupus, Autoimmune Disease
Anxiety About Painting A Future With Lupus
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease
Vicky’s Story: Mother first, therapist second, and lupus warrior last. 
Lupus, Autoimmune Disease
Vicky’s Story: Mother first, therapist second, and lupus warrior last. 
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease
Turning Down When When Everyone Wants to Turn Up
Lupus, PNH, IgAN, Autoimmune Disease
Turning Down When When Everyone Wants to Turn Up
Lupus, PNH, IgAN, Autoimmune Disease
Lupus, PNH, IgAN, Autoimmune Disease
Your Health, Your Voice: A Guide to Self-Advocacy
Lupus, Autoimmune Disease
Your Health, Your Voice: A Guide to Self-Advocacy
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease
The Hormonal Flare-Up: Why Autoimmune Symptoms Could Spike Before Your Period
Lupus, Autoimmune Disease
The Hormonal Flare-Up: Why Autoimmune Symptoms Could Spike Before Your Period
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease
Lupus Triggers and Flare-ups: A Survival Guide for the Newly Diagnosed
Lupus, Autoimmune Disease
Lupus Triggers and Flare-ups: A Survival Guide for the Newly Diagnosed
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease
Health Uncomplicated: What is Lupus?
Lupus
Health Uncomplicated: What is Lupus?
Lupus

What is lupus?

Lupus is a chronic autoimmune disease that can affect the joints, skin kidneys, blood cells, brain, heart, and lungs. Approximately 1.5 million Americans have lupus, and about 16,000 people are diagnosed with the condition each year. Globally, more than 5 million people have lupus.

Lupus
Have you been told your autoimmune symptoms are all in your head?
Lupus, Autoimmune Disease
Have you been told your autoimmune symptoms are all in your head?
Lupus, Autoimmune Disease
Lupus, Autoimmune Disease

Video content

Video Library
Living with Lupus: Patient Panel by Folia Health
Living with Lupus: Patient Panel by Folia Health
Eating for autoimmune health!
Eating for autoimmune health!
Do you feel like your lupus flares-up around your period?
Do you feel like your lupus flares-up around your period?

Paroxysmal Nocturnal Hemoglobinuria (PNH)

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Chronic Kidney Disease

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“It’s not your fault.”
“It’s not your fault.”
Jenna's Journey to Diagnosis
Jenna's Journey to Diagnosis
Have kidney disease and watching your phosphorus levels?
Have kidney disease and watching your phosphorus levels?

IgA nephropathy (IgAN)

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Video Library
“It’s not your fault.”
“It’s not your fault.”
Jenna's Journey to Diagnosis
Jenna's Journey to Diagnosis
Have kidney disease and watching your phosphorus levels?
Have kidney disease and watching your phosphorus levels?

Complement 3 glomerulopathy (C3G)

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Eczema

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Blog
Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T
Allergies, Eczema
Eczema-Friendly Sun Protection: What’s Working (and What’s Not) for Baby T
Allergies, Eczema
Allergies, Eczema
How to use Folia to track your diet when you have chronic kidney disease
IgAN, C3G, Chronic Kidney Disease, Diet
How to use Folia to track your diet when you have chronic kidney disease
IgAN, C3G, Chronic Kidney Disease, Diet
IgAN, C3G, Chronic Kidney Disease, Diet
Reflections on Hezzie - A beautiful life, and the people who stay with you
IgAN, Chronic Kidney Disease, C3G
Reflections on Hezzie - A beautiful life, and the people who stay with you
IgAN, Chronic Kidney Disease, C3G
IgAN, Chronic Kidney Disease, C3G
A Guide to Cultivating a Helpful Mindset with Chronic Kidney Disease
IgAN, Chronic Kidney Disease, c3g
A Guide to Cultivating a Helpful Mindset with Chronic Kidney Disease
IgAN, Chronic Kidney Disease, c3g
IgAN, Chronic Kidney Disease, c3g
Turning Down When When Everyone Wants to Turn Up
Lupus, PNH, IgAN, Autoimmune Disease
Turning Down When When Everyone Wants to Turn Up
Lupus, PNH, IgAN, Autoimmune Disease
Lupus, PNH, IgAN, Autoimmune Disease
From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey
IgAN
From Fighter Pilot Dreams to Kidney Transplant: Kevin's Journey
IgAN
IgAN
How to use Folia if you have IgA Nephropathy
IgAN
How to use Folia if you have IgA Nephropathy
IgAN
IgAN
Finding Stability in the Uncertainty of Chronic Kidney Disease (CKD)
IgAN, Chronic Kidney Disease, C3G
Finding Stability in the Uncertainty of Chronic Kidney Disease (CKD)
IgAN, Chronic Kidney Disease, C3G
IgAN, Chronic Kidney Disease, C3G
Winter is coming…Here are the eczema essentials that got us through last season
Eczema
Winter is coming…Here are the eczema essentials that got us through last season
Eczema
Eczema
Living the Atopic March
Eczema, Atopic march
Living the Atopic March
Eczema, Atopic march

When it’s not just eczema...adding allergies and asthma attacks to the mix!

Eczema, Atopic march
Here’s what Life is Like when Your Child is on the Atopic March
Eczema, Atopic march
Here’s what Life is Like when Your Child is on the Atopic March
Eczema, Atopic march

I was supposed to write the third entry of my Scratchy, Sleepy Baby series today, but I was in the ED with T from 5-10am experiencing his first bout with asthma.

Eczema, Atopic march

Video content

Video Library
“It’s not your fault.”
“It’s not your fault.”
Jenna's Journey to Diagnosis
Jenna's Journey to Diagnosis
Have kidney disease and watching your phosphorus levels?
Have kidney disease and watching your phosphorus levels?